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ICanCME is pleased to launch the 2026–2027 ME Stars of Tomorrow Scholarship Program. This program is designed to support promising graduate students and postdoctoral fellows conducting research in ME as part of their master's, doctoral, or postdoctoral training.
Scholarship awards are:
• $20,000 CAD for one year for Master's and PhD students
• $40,000 CAD for one year for postdoctoral fellows
Please see the attached scholarship application package for additional details, eligibility criteria, and submission instructions.
We encourage eligible candidates and trainees to apply and to share these opportunities with colleagues who may be interested.
 
 
 
Par ailleurs, ICanCME est heureux d’annoncer le lancement du Programme de bourses ME Stars of Tomorrow 2026-2027. Ce programme vise à soutenir des étudiantes et étudiants aux cycles supérieurs ainsi que des stagiaires postdoctoraux prometteurs qui mènent des recherches sur l’encéphalomyélite myalgique dans le cadre de leur formation à la maîtrise, au doctorat ou au postdoctorat.
Les bourses offertes sont les suivantes :
• 20 000 $ CA pour une période d’un an pour les étudiantes et étudiants à la maîtrise et au doctorat
• 40 000 $ CA pour une période d’un an pour les stagiaires postdoctoraux
Veuillez consulter le dossier de candidature ci-joint pour obtenir de plus amples renseignements sur le programme, les critères d’admissibilité et les modalités de soumission.
Nous invitons toutes les personnes admissibles à présenter leur candidature et à partager ces occasions avec leurs collègues et contacts qui pourraient être intéressés.
 
 
 
 

(La version française du message suit)
 
Dear ICanCME Community,
 
The ICanCME Community Leadership Team invites applications for the position of Director. The Director is responsible for overseeing the operations and strategic activities of ICanCME.
Candidates should have a demonstrated record of leadership and research excellence, along with experience in administration. The successful applicant will possess strong administrative leadership skills, particularly in the areas of collaboration, communication, and stakeholder engagement.
 
Please refer to the attached Call for Applications for eligibility requirements, position details, and application instructions.
 
Application review will begin on Friday, July 17, 2026, with an anticipated start date of Monday, September 14, 2026.
 
 
Chère communauté ICanCME,
L’équipe de leadership communautaire d’ICanCME invite les personnes intéressées à soumettre leur candidature au poste de directeur ou directrice. La personne retenue sera responsable de la supervision des activités opérationnelles et stratégiques d’ICanCME.
Les candidates et candidats doivent démontrer un excellent dossier en matière de leadership et de recherche, ainsi qu’une expérience pertinente en administration. La personne choisie possédera de solides compétences en gestion et en leadership administratif, particulièrement dans les domaines de la collaboration, de la communication et de la mobilisation des parties prenantes.
Veuillez consulter l’appel de candidatures ci-joint pour connaître les critères d’admissibilité, la description du poste et les modalités de soumission.
L’examen des candidatures débutera le vendredi 17 juillet 2026, et l’entrée en fonction est prévue le lundi 14 septembre 2026.
 

We are pleased to bring you the Spring 2026 edition of our Quest newsletter.

In this issue:

  • Fixing the Health and Disability Systems for ME and FM

  • Constitutional Responsibilities 

  • Health and Disability at the Federal Level 

  • The Convention on the Rights of Persons with Disabilities

  • Our UN Submission 

  • CRPD Review and Follow-up 

  • The Implementation Gap

  • The Quality of Life Framework 

  • Is This a Good Time to Move Forward? 

  • Additional Notes 

Download the pdf HERE

We are pleased to bring you the Winter 2026 edition of our Quest newsletter.

In this issue:

  • Press Release from Fibro Winnipeg

  • Young people with ME - a Research Study

  • UK MP’s Debate ME

  • Scottish MP Writes About ME

  • Network writes to Ministers 

    To Canada’s Minister of Health 

    To Canada’s Minister of Jobs and Families

  • Disability Skepticism at Provincial Tribunals

  • Contested and Neglected: Severe ME/CFS

  • Germany to Fund Post-infectious Disease Research

Download the pdf HERE

 

 

FM - A Multi-System Illness

Full report click 2025_Community_Survey_Report

This report, conceived and commissioned by four BC organizations, presents the results of an on-line survey of ME, FM, Lyme and Long COVID patients in BC conducted during the winter of 2024-25. The survey asked people to give their perspectives on strengths and weaknesses of the existing health care system and to identify opportunities for improvement. Just over 1,000 people in BC participated in the survey.

The survey shows that respondents have had some good and many bad experiences in the health system. Bad experiences included being dismissed, disrespected or disbelieved, getting wrong diagnoses or harmful treatments, and receiving little help with financial applications. It is notable how appreciative the respondents were of good experiences, even when the experience was as basic as being believed.

Here are three specific take-aways from the survey:

·       Despite all their bad experiences, the respondents said that they want one-on-one care from doctors. People understand that they need individualized, on-going, informed medical care

·       The health system has a role to play in helping patients access financial and social programs. For some patients, this is very important.

·       Emergency rooms can be very difficult for these patients.

 

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