News - NETWORK NEWS

Day 1 - May 3, 2018 (afternoon)

Pre-Conference Workshop on Meeting Unmet Needs

Participation in the workshop is open to anyone interested in discussing how services could be delivered to people with ME/CFS and related illnesses in the years to come.

1:15-1:30                Welcome, Objectives, Agenda

1:30-2:30                Ontario Task Force on Environmental Health

The Ontario Task Force was appointed by Ontario's Minister of Health to look at gaps in services for Ontarians with ME/CFS, Fibromyalgia and Environmental Sensitivities/Multiple Chemical Sensitivities. Their year-1 report made a number of important recommendations.

Dr. Ray Copes, Chair, Ontario Task Force on Environmental Health will provide an overview and a short update. This will be followed by questions on the report and discussion of what has been learned in other jurisdictions.

2:30-2:45                Break

2:45-3:15                Diagnosis & Treatment Protocols for ME/CFS & FM

Margaret Parlor, President, National ME/FM Action Network will provide a status report. This will be followed by questions and discussion.

3:15-4:20                Care Pathways – what services and who provides them

Small groups will discuss how services could be provided in the years to come.The discussions will consider patient needs as well as system constraints.

4:20-4:50                    Next Steps in meeting unmet needs

  There will be discussion of what immediate actions can be taken to advance services.

4:50-5:00                     Closing Remarks

Organized by the National ME/FM Action Network.

Facilitator: Margaret Soden, Soden Leadership Group, sodenleads.com