Resources - Quest Newsletter

February 1, 1994 No. 4

• The National ME/FM Action Network newsletter gets a name

• Report on claiming a Disability Tax Credit

• Update on Ampligen

• Pain and serotonin explanation

• Books and newsletters update

• Inter-group and contacts communications

• Request to track estrogen impact

• May 12 activity updates

• National ME/FM Action Network Treasurer's Report

April 1, 1994 – No. 5

• National ME/FM Action Network granted charitable status

• National ME/FM Action Network requests information from individuals having had stereotactic temporobe biopsies

• National ME/FM Action Network receives reply from U.S. Centers of Disease Control & Prevention on request of draft ME/CFS booklet

• Involvement of support groups to U.S. Centers of Disease Control & Prevention on ME/CFS information booklet planned

• College of Optometry in New England begins eye survey the participation of the National ME/FM Action Network

• Lawyer supplies the National ME/FM Action Network with first legal precedents of court cases on ME/CFS, FM, Chronic and Myofascial Pain

• National ME/FM Action Network sends out insurance questionnaire/survey to support group leaders and contacts

• Report on treatment with Kutapressin

• Minister of National Health & Welfare expresses support for National ME/CFS Awareness Day

• National ME/FM Action Network supplies addresses of Health Ministers of the Canadian Provinces and asks participation to bring awareness to governments on ME/CFS and FM.

• Information on walk on Parliament Hill for May 12

• Books and newsletters information

• More additions to Board of Directors of the National ME/FM Action Network

June 1, 1994 – No. 6

• New additions to Board of directors of the National ME/FM Action Network

• Kutapressin Update from Schwarz Pharma

• Tips on insurance matters

• National ME/FM Action Network contacts British Columbia Teachers' Federation for clarification on its stand with ill teachers

• Addition to National Lawyers' Roster

• Conference announcement and news releases

• Charter to be issued to the Journal of the Chronic Fatigue Syndrome (U.S.)

• Inter-group/contact communications

• Personals

August 1, 1994 – No. 7

• President cautions on treatment and drugs

• Final revisions of U.S. Centers for Disease Control & Prevent ME/CFS brochure

• World Health Organization classifies illness as Fatigue Syndrome in ICD-10

• Personals

• Australia announces possible physiological marker for CFS

• Director at London's University Hospital establishes Fibromyalgia Program

• Books and newsletters updates

• First peer-reviewed, multidisciplinary Journal for Chronic Fatigue Syndrome published by Haworth Medical Press (U.S.)

• National Doctors' and Lawyers' Roster Additions

• Support group information

October 1, 1994 – No. 8

• Long-waited U.S. Centers for Disease Control & Prevention CFS booklet becomes available

• Ontario Solicitor General & Minister of Correctional Services explains Private Investigators for insurance company and misconduct actions

• Tip to keep records of important calls and contacts

• Newsletters, books, videos updates

• Information on government grants

• Doctor starts health question section in the newsletter of the National ME/FM Action Network

• Inter-group communications

• National Lawyers' Roster addition

• Electronic mail information and reminders

December 1, 1994 – No. 9

• National ME/FM Action Network first financial statements prepared by auditors

• Judge rules that "Fibromyalgia doesn't exist.........."

• U.S. Centers for Disease Control and Prevention publishes the long-awaited CFS case definition in Annals of Internal Medicine

• Newsletters, books, videos etc. information

• Inter-group communications

• Governor of Parsons Kansas announces month of May Fibromyalgia / Chronic Fatigue Syndrome Awareness Month and May 12 ME/CFS Awareness Day

• Preliminary report by Wilfrid Laurier University on experiences of individuals with ME/CFS

• Additions to board of directions of the National ME/FM Action Network

• Tips on taking medication and reading difficulties